Why I Work From Home

This is how my foot looked when I got home last night. It was so painful, I could barely walk. I’m very thankful most of my time is spent working (just as hard) at home, and my days in the office are few and far between. The ability to work remotely makes a big difference … Continue reading

Happy International Day of Persons with Disabilities!

Happy International Day of Persons with Disabilities!

Did you know that today is the UN’s International Day of Persons with Disabilities? According to their site, this year’s theme is “Break Barriers, Open Doors: for an inclusive society and development for all”. Absolutely!  Consider these statistics from the UN website: Approximately 15 percent of the world’s population, over 1 billion people, live with … Continue reading

What’s it Like to Have RA?

I’m in the middle of a bad flare, currently trying to get work done from bed. As I was thinking about how to describe how the feeling to my colleagues, friends, and family, I came across this video: Wow. What a help it would be if, as part of their training, our rheumatologists all wore a suit like … Continue reading

Travel and Chronic Illness

Travel and Chronic Illness

As the holidays approach, I’ve been thinking a lot about travel.  Anyone with chronic illness can tell you that the thought of travel is as exhausting as it is exciting.  The change to routine, the long flights, the additional medications, the stress of being away from doctors and the comforts of home – they don’t even … Continue reading

Ups and Downs

Ups and Downs

Xeljanz. It’s been working well on my RA symptoms for the last few months.  During that time, I’ve been squeezing as much life out of every day as I can. Quite frankly, I had forgotten how to balance that kind of “busy-ness”. I definitely overdo it some days, and I pay the price for that, … Continue reading

It’s Been Awhile…

It’s Been Awhile…

So sorry about that.  But guess what?  I haven’t been blogging because my life turned upside down, in a good way. Cue the drumroll………….Xeljanz is working!!! It’s been almost 6 months since I starting taking this brand spanking new biologic, and in the 3.5 years since my diagnosis, nothing has worked better!  Here’s where I … Continue reading

Gluten-Free Baking with Cup4Cup!

Gluten-Free Baking with Cup4Cup!

When I first discovered my gluten intolerance, I stayed away from baking completely.  When I first dipped my toes in, it was with a very pricey Ad Hoc gluten-free brownie mix I found at Williams-Sonoma.  I adore Thomas Keller, so I trusted what I was buying, and as expected, the end result was phenomenal!  Of … Continue reading

Here it is!

Here it is!

Just thought I’d share the excitement.  Drumroll please… I started taking it on Friday.  It’s too early to tell if Xeljanz is going to work for me, but since I’m not covered in hives yet, so far, so good. :)