Did you know that today is the UN’s International Day of Persons with Disabilities? According to their site, this year’s theme is “Break Barriers, Open Doors: for an inclusive society and development for all”. Absolutely! Consider these statistics from the UN website: Approximately 15 percent of the world’s population, over 1 billion people, live with … Continue reading »
I’m in the middle of a bad flare, currently trying to get work done from bed. As I was thinking about how to describe how the feeling to my colleagues, friends, and family, I came across this video: Wow. What a help it would be if, as part of their training, our rheumatologists all wore a suit like … Continue reading »
As the holidays approach, I’ve been thinking a lot about travel. Anyone with chronic illness can tell you that the thought of travel is as exhausting as it is exciting. The change to routine, the long flights, the additional medications, the stress of being away from doctors and the comforts of home – they don’t even … Continue reading »
Xeljanz. It’s been working well on my RA symptoms for the last few months. During that time, I’ve been squeezing as much life out of every day as I can. Quite frankly, I had forgotten how to balance that kind of “busy-ness”. I definitely overdo it some days, and I pay the price for that, … Continue reading »
So sorry about that. But guess what? I haven’t been blogging because my life turned upside down, in a good way. Cue the drumroll………….Xeljanz is working!!! It’s been almost 6 months since I starting taking this brand spanking new biologic, and in the 3.5 years since my diagnosis, nothing has worked better! Here’s where I … Continue reading »
When I first discovered my gluten intolerance, I stayed away from baking completely. When I first dipped my toes in, it was with a very pricey Ad Hoc gluten-free brownie mix I found at Williams-Sonoma. I adore Thomas Keller, so I trusted what I was buying, and as expected, the end result was phenomenal! Of … Continue reading »
Just thought I’d share the excitement. Drumroll please… I started taking it on Friday. It’s too early to tell if Xeljanz is going to work for me, but since I’m not covered in hives yet, so far, so good.
When you are diagnosed with a chronic disease like Rheumatoid Arthritis (RA), you quickly learn that your life is destined to include medicine. For many of us, lots of medicine. Back in 2010, I bought a “days of the week” pill sorter, and I’ve adapted to the weekly ritual of filling it, counting and … Continue reading »