Good News, Bad News

Good News, Bad News

It’s been a huge equal rights week here in FL, and everything lately seems to follow the pattern of good news, bad news. *** GOOD NEWS: Monroe County rules Florida’s same-sex marriage ban unconstitutional! This victory only applies to one county, but is a first and vital step toward full marriage equality in FL, and ultimately … Continue reading

3 Things The Chronically Ill Wish Their Loved Ones Knew

Wanted to share this post from the amazing Toni Bernhard, author of the Turning Straw Into Gold column at Psychology Today and author of the brilliant How to Be Sick. If you are chronically ill, or love someone who is, please read her work. She’s amazing, as evidenced here: http://www.psychologytoday.com/blog/turning-straw-gold/201405/3-things-the-chronically-ill-wish-their-loved-ones-knew Just wow. As Lora can certainly tell you, I … Continue reading

Why I Work From Home

This is how my foot looked when I got home last night. It was so painful, I could barely walk. I’m very thankful most of my time is spent working (just as hard) at home, and my days in the office are few and far between. The ability to work remotely makes a big difference … Continue reading

Happy International Day of Persons with Disabilities!

Happy International Day of Persons with Disabilities!

Did you know that today is the UN’s International Day of Persons with Disabilities? According to their site, this year’s theme is “Break Barriers, Open Doors: for an inclusive society and development for all”. Absolutely!  Consider these statistics from the UN website: Approximately 15 percent of the world’s population, over 1 billion people, live with … Continue reading

What’s it Like to Have RA?

I’m in the middle of a bad flare, currently trying to get work done from bed. As I was thinking about how to describe how the feeling to my colleagues, friends, and family, I came across this video: Wow. What a help it would be if, as part of their training, our rheumatologists all wore a suit like … Continue reading

Travel and Chronic Illness

Travel and Chronic Illness

As the holidays approach, I’ve been thinking a lot about travel.  Anyone with chronic illness can tell you that the thought of travel is as exhausting as it is exciting.  The change to routine, the long flights, the additional medications, the stress of being away from doctors and the comforts of home – they don’t even … Continue reading

Ups and Downs

Ups and Downs

Xeljanz. It’s been working well on my RA symptoms for the last few months.  During that time, I’ve been squeezing as much life out of every day as I can. Quite frankly, I had forgotten how to balance that kind of “busy-ness”. I definitely overdo it some days, and I pay the price for that, … Continue reading