It’s been too long since I’ve posted the link to Christine Miserandino’s brilliant Spoon Theory. There is simply no better explanation of what it’s like every day to live with a chronic illness (or three).
I think “counting spoons” has been one of the hardest adjustments I’ve had to make over the last 3.5 years. Before my diagnoses, I had boundless energy. When I look back, I marvel at the things I accomplished in those days, with no thought to running out of gas. Now that I have a finite number of spoons though, I have twin struggles:
1) Saying ‘no’ when I want to jump in, so I can make sure my spoons last through the day most of the time.
2) Sweating the details: every. little. thing. from how I hold my toothbrush to where/how I need to sit when I work. I suppose it’s a good thing I’m a Type A personality, but this level of planning is excessive! 😉
If you have not read Christine’s wonderful piece yet, please take a few minutes to do so. Whether you have a chronic illness, or you love someone who does, it will provide a perspective on our daily lives unmatched by anything else I’ve seen. If you’ve already read it, I’d recommend another glance. It’s enlightening every time!