It’s been too long since I’ve posted the link to Christine Miserandino’s brilliant Spoon Theory. There is simply no better explanation of what it’s like every day to live with a chronic illness (or three).
I think “counting spoons” has been one of the hardest adjustments I’ve had to make over the last 3.5 years. Before my diagnoses, I had boundless energy. When I look back, I marvel at the things I accomplished in those days, with no thought to running out of gas. Now that I have a finite number of spoons though, I have twin struggles:
1) Saying ‘no’ when I want to jump in, so I can make sure my spoons last through the day most of the time.
2) Sweating the details: every. little. thing. from how I hold my toothbrush to where/how I need to sit when I work. I suppose it’s a good thing I’m a Type A personality, but this level of planning is excessive! 😉
If you have not read Christine’s wonderful piece yet, please take a few minutes to do so. Whether you have a chronic illness, or you love someone who does, it will provide a perspective on our daily lives unmatched by anything else I’ve seen. If you’ve already read it, I’d recommend another glance. It’s enlightening every time!
I’m interested in people who have been fighting major depressive illness and anxiety disorders ( and dealing with the meds) for many years before being diagnosed with RA. Anyone have any good ideas about dealing with that combination?
Hi Ann,
I don’t have information, but I know that there are many people that have these double diagnoses. So, I suspect there are resources available. Thanks for reading, and good luck to you!
Jessica